Survival rate

A couple of people have asked me Paige's prognosis and survival rate and I don't think that is something I have posted yet. I don't mind people asking me questions at all, I am very open about it. We were told her survival rate is in the mid 70%. I was a little bummed when I heard this, I really wanted it to be high 90's, who wouldn't? They expect Paige to make a full recovery but not without complications. I will take the complications though....Some of her complications will be a secondary cancer, not a guarantee though, no pituitary gland function, which she will get hormone shots for everyday during adolescence and loss of hearing but she seems to hear just fine, Major dental work, which we are already seeing problems with. Where the radiation went in at, it probably got her salivary glands and so she doesn't have spit and it causes severe dry mouth and will decay her teeth. Her back tooth is already falling apart, like it is chipping away. It has to hurt so bad but she can't go to the dentist until she is done with chemo. She is a good little trooper though and I know she will be just fine. I love her and Carson and Syd so much and I am so glad to have them!! I hate that Paige has to go through this!! HATE IT!! She wants earrings in her ears so bad, just a few more months. I just need to get her sticker earrings.

I am so glad I have such good friends!! One of them just helped me redo my blog, I am kinda blog stupid!! Haha. Friends help out so much, emotionally! I am so thankful for them!

First Day of School!!

Today was Carson and Sydnee's first day of school!! Sydnee was a little nervous last night, she was trying so hard not to cry. Carson seemed totally fine, not scared at all. When Brad dropped him off though, he was nervous and SUPER clingy! They had a fun first day and best of all, no homework! Wahoo!!

I was going to take the kids to school today but Sydnee didn't want me to. She said that when she watches me walk away it makes her miss me and that's how her body works and she doesn't know why it does that. Poor girl, they have been through a lot this year.

Dentist!

Carson and Sydnee went to the dentist today and... No cavities!!! They got their picture taken and it gets posted to the wall! :) It was really only by accident that they didn't have cavities, they eat tons of sugar! haha. I thought Carson would be over the scared stage but he wasn't. He was so nervous, he hated the x-ray, hated it! Sydnee did really good, wasn't nervous at all.

Low immune system/school starting

So Paige has almost a 0 immune system! This is the first time she has ever dropped that low! The doctor just said to watch for a fever and if she gets one, we are on our way to the hospital!

Carson has been going to summer school and he has really enjoyed it. I hope he enjoys school a little better! He has always struggled with it. He loves one of his teachers though, Mrs. Harris, he LOVES her. He always talks about her and how nice she is. He totally needs that!

Sydnee loves school, she doesn't struggle at all and all summer long has made herself homework to do. Not sure where she came from!

Paige would be going to pre school this year, she got in at the elementary school but she won't be going. Maybe after the first of the year or something but we will probably wait till next year.

I am really excited for school to start. My kids won't quit fighting! I am a little scared that Paige will catch something from them, but we will deal with that when it comes. My kids need out of this house! :) I need them out too, my house needs a deep cleaning!

Visitors

My sister, Jennifer and her family came to visit this last month. We had a lot of fun with her!! I am glad she came up to visit, although I didn't get a lot of pictures, not sure why. I will have to dig them out later and post them.
While she was here, Paige's red blood dropped and so she had to get a transfusion. They transfuse at 24 and she was at a 20. So she was super anemic!! While we were in the hospital, Jennifer and my mom took my kids and all the cousins swimming at Lava. My kids had a lot of fun on those slides!!
We did a 5k together and we rode Arkansas a couple times together. It was great having her here for a few weeks!